Tarah and Eric O’Sullivan are searching for treatments for their son, Drake, who was born with Nonketotic Hyperglycinemia.

Upstate family fighting back against rare disease

Billy Cannada's picture

Eric and Tarah O’Sullivan knew a fourth child would change their lives—they just didn’t realize how much.

In October of 2016, the Upstate couple was preparing to welcome Drake Rayden to the family.

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